The City of Dublin Skin and Cancer Hospital Charity
  • Home
  • Activities
    • Patient Centred
    • Research Centred
      • Academic Research
      • Clinical Support
  • About
  • Governance
  • History
  • News & Events
  • Contact
  • Search
cdc-w9KEokhajKw-unsplash-scaled
June 14, 2020

COVID-19 dermatology registries*, Global Skin townhall webinar May 21

News & Events

The International Alliance of Dermatology Patient Organisations (IADPO)  also known as Global Skin, of which the ISF is a founding member, convened a webinar titled: Understanding COVID-19 & its impacts on dermatology patients.

Representatives from patient organisations around the world attended this live ‘townhall’ style meeting which hosted an excellent presentation by Dr Esther Freeman, Assistant Professor of Dermatology at Harvard Medical School, and a member of the American Academy of Dermatology (AAD) COVID taskforce.

According to the AAD, there is evolving evidence suggesting that skin manifestations may occur in some patients with the virus. Dr Freeman, gave an update on dermatological manifestations that are being reported in the COVID-19 dermatology register and how clinicians are tracking COVID-19 in dermatology patients around the world, through the creation of COVID-19 registries.

In April 2020, the AAD and the International League of Dermatological Societies (ILDS) sponsored an international registry (COVID-19 dermatology register). This COVID-19 dermatology registry is a survey submitted by a clinician taking care of (a) COVID-19 patients who develop dermatology manifestations or (b) dermatology patients with an existing condition who develop COVID-19. The registry has at the time of the webinar recorded 700 cases from 31 countries. Analysis ongoing, and publications under peer review.

Dr Freeman spoke about the wide range of skin manifestations they are seeing in the registry and highlighted the more commonly reported skin symptoms, which included: purple, swollen, tender lesions (similar to chilblains) on hands and feet also known as COVID toes, non-specific viral rashes, fluid filled bumps similar to chicken pox and urticarial (hives) presentations.

Similarly, a Spanish paper published in the BJD April 2020, authors Galvin Casas et al. identified five common skin manifestations of COVID-19. in 375 cases in Spain1.

COVID-19 dermatology registries worldwide

The AAD Covid-19 dermatology Registry is one of several registries worldwide recording data from people with dermatological manifestations associated with COVID-19. Other global registries include:

  • French Dermatology Society COVID Registry
  • Global HS COVID-19 registry
  • PsoProtect
  • SECURE-AD
  • SECURE-Alopecia
  • Spanish Dermatology society COVID PIEL Registry

Some of these registries are disease specific and the data for these registries is submitted by clinicians. PsoProtect (psoriasis registry) has just reported on 239 cases from across 22 countries recently.

Self-Reporting: COVID-19 Psoriasis registry

There is a self-reporting registry for people with psoriasis called PsoProtectMe. This self-report survey is to help understand how the COVID19 pandemic is affecting people with psoriasis, whether you have had COVID19 symptoms or not. The survey takes about 10 minutes to complete and asks about your symptoms, psoriasis treatments and any underlying health conditions you may have.

  • Related: Irish Skin Foundation, a partner with PsoProtect
  • Related: New survey for psoriasis patients to self-report experiences of COVID-19

Benefits of these COVID-19 dermatology registries

Dermatology registries are very important, the data collected potentially provides an opportunity to explain some of the impact of COVID-19, better understand the clinical course and outcomes and inform clinicians in the management of patients with these skin diseases, during this pandemic.

For more information on these registries

Click onto Global Skin COVID-19 information page, which lists the current registries.

* A patient registry is an organised collection of information using observational methods about individuals, with a specific diagnosis. Registries have multiple uses, which may include some of the following: provide information to clinicians with the aim of learning more about the disease, establish the basic features of the disease, how it is managed in a clinical setting, measure clinical effectiveness and safety of treatments and support specific research questions.

Reference:

  1. Galvan Casas C. et al. Classification of the cutaneous manifestations of COVID-19: a rapid prospective nationwide consensus study in Spain with 375 cases. British Journal of Dermatology, 2020; doi:10.1111/bjd.19163
Know Your Fitzpatrick Skin Type: Protect Your Skin! ISF Calls for Access to Life-Changing Eczema Treatment

Related Posts

University Hospital Waterford

News & Events

Waterford Study Highlights Poor Awareness of Serious Co-Morbidities in Irish Psoriasis Patients

schoolkid-scaled-e1600350347784

News & Events

Back to School & New Routines: Some Practical Tips for Parents of Children with Eczema

shutterstock_1148963633

News & Events

ISF Calls for Access to Life-Changing Eczema Treatment

Recent News

  • University Hospital WaterfordWaterford Study Highlights Poor Awareness of Serious Co-Morbidities in Irish Psoriasis Patients
    November 2, 2020
  • schoolkid-scaled-e1600350347784Back to School & New Routines: Some Practical Tips for Parents of Children with Eczema
    September 24, 2020
  • shutterstock_1148963633ISF Calls for Access to Life-Changing Eczema Treatment
    July 24, 2020

Pages

  • Home
  • Activities
    • Patient Centred
    • Research Centred
      • Academic Research
      • Clinical Support
  • About
  • Governance
  • History
  • News & Events
  • Contact

A Century of Service

A Century of Service
Recognising that the initiatives on which it had embarked could not have been achieved were it not for the endeavor of many people who had served the City of Dublin Skin and Cancer Hospital during its near century of existence, the Charity funded publication of a history of the Hospital to mark its centenary year. A Century of Service: The City of Dublin Skin and Cancer Hospital 1911 – 2011 by Eoin O’Brien is available from the Irish Virtual Research Library and Archive at the James Joyce Library in University College Dublin and for download in PDF format below.

This work is distributed under a Creative Commons non-commercial license. Copyright and all other rights are retained by its author. For more information please visit the Creative Commons website.

DOWNLOAD PDF
The City of Dublin Skin and Cancer Hospital Charity
    • Home
    • About
      • Governance
    • Activities
      • Patient Centred
      • Research Centred
        • Academic Research
        • Clinical Support
    • History
    • News & Events
    • Contact
    • Members Area
    • Legal
    • Privacy Policy
    Charity Number: 3655. All content Copyright © 2017 The City of Dublin Skin and Cancer Hospital Charity. All rights reserved.

    Recent Posts

    • University Hospital WaterfordWaterford Study Highlights Poor Awareness of Serious Co-Morbidities in Irish Psoriasis Patients
      November 2, 2020
    • schoolkid-scaled-e1600350347784Back to School & New Routines: Some Practical Tips for Parents of Children with Eczema
      September 24, 2020
    • shutterstock_1148963633ISF Calls for Access to Life-Changing Eczema Treatment
      July 24, 2020

    About The Charity

    Following the closure of The City of Dublin Skin and Cancer Hospital in 2006 after nearly a century of providing treatment to patients with skin disease and cancer from all parts of Ireland, the Dublin Skin and Cancer Hospital Charity was established to operate according to the dictates of the Charter granted to the Hospital in 1916 in administering the proceeds of the sale of the Hume Street premises.